Here is the article that I am so angry about:
http://www.disabilityscoop.com/2013/02/22/feds-aba-insurance/17346/
You all know that I do not post political things very often but this really ticks me off. I'm not surprised that Obama dropped the ball on this and at first I was sad and disappointed but the more I think about it, the angrier I get. THIS IS RIDICULOUS...Our community takes another hit. I mean really- first they change the DSM creating a world where there "isn't an autism epidemic" so now many kids will no longer qualify for much needed services and the Obama administration can turn their heads and pretend it doesn't exist. And now this??
You are telling me that substance abuse treatment is mandated and ABA therapy for autism is not? REALLY? We're just left to flounder on our own with no help whatsoever? I'm not asking for a handout, I'm asking for the administration to acknowledge autism as a neurological disorder (as defined by NIH) and have the already proven most effective therapy to help create a future for these kids covered by insurance.
You (Obama) don't get to change the rules based on what is convenient for you and expect not to hear from me. I am an angry mom with a son who has autism. We aren't invisible just because you choose to ignore us. I will not allow you to impress upon my son that he isn't important. That he doesn't matter. That he isn't worthy of acknowledgement based on who he is but would be if he chose to be an alcoholic instead. And then as another slap in the face, you are leaving it up to the states and pretending that it's an answer when (currently according to Autism Speaks) only 26 of them currently cover treatment for autism. So these kids can only receive help if they live in the right areas? Unbelievable.
I am so grateful for my faith in God because this world's priorities are unbelievably backwards and without my faith, I would be crushed. You will be hearing from me Mr. President. I will be a thorn in your side.
~Joy
(c) 2013 Joy-Jasmin Brunnelson All Rights Reserved
2 comments:
It is pathetic how substance abuse is treated but autism is not. Children did not have a choice. Go get em Joy!!!
It really is Mindy! I think the substance abuse issue has hit a nerve especially with me (hence my focus on it) because I have no tolerance for it...I've lived with it (family member) and have had to clean up the mess again and again behind them. Like you said: substance abuse is a choice, autism is not. I'm not asking for help to clean up a mess that's been made, I'm asking for my son to have the resources to be on the same playing field as typical children. We pay out of pocket for Javin's therapy (obviously we have no choice) and I couldn't even imagine where he would be today without it. Being forced to pay for insurance that doesn't even help our family is stupid. And then on top of it, the media was reporting during the election that it was the Republicans who didn't care about autism/special needs (Romney/Ryan)...obviously an outright lie and yet no one has to answer to that. Ugh! I have so many letters written...they are going to every representative in Maryland, to the senators, Congress, and directly to Obama. They will hear from me. I need an answer.
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